I had given up hope, but now I have a plan to save my
For the first time in many
years, I have hope again. Some of you know what I’ve been going through. Both having Marfans Syndrome and Multiple
Sclerosis has been really hard on me. My MS is progressing now. Each year I can walk less and less. M.S. has taken
so much away from me.
Today, I can only walk for about 15 mins before my legs give out on me. I can’t see
very much out of my right eye. It is almost like everything is the same color in it and bright. I also have
problems using the restroom. My memory comes and goes. I have lesions on my brain, neck and spine now. When I get
hot, I go blind and stop moving. I just can’t tell you what this has not only done to me but my family. After doing
a lot of research on HSCT, I have decided to do it. I know a few people that have had it done and it has greatly
help them with their MS.
Multiple Sclerosis is an autoimmune disease where your own immune system attacks you.
HSCT uses chemo to kill your immune system and then introduces stem cells back into you to restart your immune
system. There are a few places in the United States doing trials, which I was not accepted in. So, I’m force into
leaving the country to have it done. I have to pay for it all out of my pocket. $54,500 to have the treatment plus
everything else that goes along with it. Such as a MRI done within 2 months of the treatment. Being out of
work for a couple of months. Airfare and hotel. When I come back I will still need some infusions. There is a
lot to get done in a short amount of time.
I’m in a race against my body. I miss the small things in life. Like going for a long
walk. Using the restroom like a normal person. Not having pain. I can tell that my mind is not what it used to be.
Stem Cell therapy can help me with a lot of my problems. But as you can image $60,000 plus is a lot of money
for anyone to come up with. I’m overwhelmed right now not only with coming up with the money to do this, but taking
a month away from my family and work. I am a very humble person that hates to ask anyone to do anything for
To be honest I had given up on any hope of improving my situation. I may have to have
surgery soon on top of that to help me urinate. It is very hard to deal with all of this and not just want to give
up. I still work full time and have five kids to take care of. I’m lucky enough to have a great family that loves
me. But I need help right now. This is my last option and the only hope I have right now.